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14 posts
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Desperately needing assistance, my wife is dying

Lollaloop started this conversation

Out of desperation and with no dignity left, i am appealing for help. My wife, Natalie, was diagnosed with non-hodgkin's lymphoma early last spring, after being in remission for almost seven years. Unfortunately this bought with cancer is terminal. I promised Natalie that she would die at home when the time came. I leave my wife alone everyday i go to work. I need to work as I have exhausted all our financial resources and simply have no choice, regardless of how cruel leaving her is. Caring for my wife at home is expensive and beyond any of my resources. We don't qualify for medical benefits as my wife had a previous pre-existing condition. Welfare is not an option unless we are willing to be deceptive. If you had the pleasure of meeting my wife you would know that she is regarded as an honest, generous and caring woman. I would like to take care of my wife and have her die at home in my arms surrounded by her children and bunny, Lollaloop. I'm failing miserably, i don't know what else to do but beg for help. We are proud people, who no longer have the luxury of pride or dignity. If you can help and you may have advice on how to gain help, i would be greatly in you debt. I have sold everything of any value, however i do have a piece of wood that someone may find valuable. When my wife was diagnosed with cancer the first time, her father in-law was cutting down a tree nub and on the face of this nub is the image of what appears to be an angel or the virgin Mary. We've kept it all this time its really the only thing i can think of that someone might find valuable.

I am willing to provide financial records, medical records and references to provide proof of our dire situation.

If you take anything from our story, i plead with you to lobby our government to develop and implement programs to help those families who don't qualify or refuse to deceive the government to access welfare and other government agencies providing desperately needed medical care and medications.

Thank you,

Natasha Reid

 

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Starshine
 in response to Lollaloop...   

Hi

When you log back in go to my blog 

 http://starshine1.aidpage.com/

go to second page of my blog -Cancer help for any women going through cancer  The organization called now and said to click on the Canadian tab to see if it is available in your area..It is house cleaning free for women with cancer...

Good luck

Starshine

reply to Starshine
nightstar
 in response to Lollaloop...   

Well sorry about that, hopefully other people will see the link. The income guidelines have increased in alot of the programs now. If I run accross something else I will look you up.

Mike

reply to nightstar
Lollaloop
 in response to nightstar...   

Hi Mike,

I'm sorry, I think I failed to mention that we are Canadian citizens. I looked up the PAP program as you suggested and to qualify you must be an American citizen. We have various programs here in Canada that offer limited coverage to those who fall bellow the poverty line. Although we are very grateful to live in a peace loving, democratic country, our family doesn't fall within the poverty line. I appreciate your advice and I thank you for directing us to a potential resource. Thank you , again

Natasha Reid

reply to Lollaloop
Starshine
 in response to elizabethc...   Thank you but it is Lollylaoop whose wife has cancer and needs his and her story passed around..
reply to Starshine
nightstar
 in response to Lollaloop...   

Please give a PAP program a try at www.scbn.com they have a program for non generics at 20.00 a month no matter what the quantity.

mike

reply to nightstar
Starshine
 in response to Lollaloop...   

Thank you for explaining and Alberta, Canada is beautiful. I will have to refresh my memory and look it up later as I think Lake Louise, plus some other places I saw when I was way younger is in Alberta Canada and this big hotel in town of Baniff is in that providence.

I hope the drug company can reduce the rate of the drug your wife needs. We have the same problem here with cost of drugs and some people go elsewhere to get them cheaper..

Yes, you are lucky!!!

Take care

reply to Starshine
Lollaloop
 in response to Starshine...   We live in Alberta, Starshine. We are lucky to live in such a great country. Natalie's parents live in Ontario and the resources there are fewer than in Alberta. Alberta has many great services for individuals that fall bellow the poverty line, providing a variety and ranges of services. Our family doesn't qualify for many of these services because of my income. Truthfully we are not homeless, nor are our children hungry. Our resources go towards medication and supplies. For instance a drug that prevents my wife from vomiting, Ondansetron works very well for her. If Natalie took Ondansetron in the quantity that it is prescribed it would cost us $2860.00 a month. Although we cannot afford that amount she takes the drug less frequently, leaving money for other types of meds. I think it's criminal to charge such an outrageous fee for a drug that is so useful and would add to my wife's quality of life. So as i am moaning about my problems, keep in mind that although Natalie doesn't take meds in the dose they are given, WE DO HAVE MEDS, which is a blessing. From what i have been reading on here, we are lucky!
reply to Lollaloop
Lollaloop
 in response to elizabethc...   Thank you for your words of encouragement and kindness. We believe in the power of prayer and we thank you for adding us to your prayer circle. Thank you again, Natasha
reply to Lollaloop
Lollaloop

I was brushing Nat's hair and she asked me what was on my mind... I told her I made an appeal for help on a web site. She asked me to read her some of the stories, and after having done so, instead of sleeping, all i can hear is my wife's outrage!

I love my wife, she is sure one in a million. After injecting and running her iv meds, frequently moaning from the pain of shifting her body, she requests of me, " darling, you must clarify what your true need is and please honey, be helpful..."

So, here goes...I thought I could slip into bed ignoring my conscience and filing my wife's request under the " when i have time, pile". No sleeping for me, not till i am more clear about what my need is.

Firstly, we are very fortunate, we did have a house to sell, so we were never homeless. As a result of the sale we moved into a rental, we sold our car, but we live in a city where i can take the public transit to work. I have a job, i work as a temp for Canada Post although we don't have benefits the money i do make does cover rent and basic needs. My wife insists that if its ever too much financially, emotionally or physically she will willingly and without judgement go into palliative care at the hospital. Our doctor somehow always seems to find a way to give us samples of meds, a delivery of medical supplies is always delivered anonymously to our door... Our oldest son who is 18 has given up many of his free hours to sit and read to his mother, cooks supper and stays with her 2 days a week while i work. Our rabbit, Lollaloop always has clean fresh litter and food- provided by Paradise Pets free of charge weekly. Our children have never been hungry, homeless or unable to access quality health care. My wife saw our oldest son graduate from high school and we helped her dance with him at the celebration. My wife's parents would die for my wife if it meant they could ease her suffering. Our church collected $410.00 just because!

My point is, i didn't mean to be so selfish. Natalie is right, there are so many of you that have so little and money is always useful and can ease so much discomfort. But there are so many that need more than we do.

Clarify my need...I sometimes want to vent, i want someone to cry with, i want my wife's suffering to end, i want to be holding her when she passes, i want to know that its ok to be angry sometimes, i want to know that when my wife passes i will no regrets, i want to know why someone so innately good suffers so much, i want our children to remember their mother and all the great things she did with them, i want to remember Natalie as a wife and not my wife with cancer... can i be clearer, probably but im just mired in this guilt for having asked for help when its clear that there are more deserving than us.

Off to bed now, feeling a little lighter. Help can come in many forms, if I can be of any help dont hesitate to ask.

 

 

reply to Lollaloop
elizabethc
 in response to Starshine...   

My heart and my prayers, are with you and your wife, and family. If I had any money whatsoever I would give it to you in a heartbeat. I do know alot of people though, and I will pass your story on to anyone I think is in a position of helping. I am also going to enter you, your wife, and family in my prayer circle. God is the GREAT DOCTOR so please don't ever give up hope. I will be praying for ya'll.

God Bless

reply to elizabethc
Starshine
 in response to Lollaloop...   

You are welcome and it was my pleasure to help. I wish I could find more for you. Does any program such in Ontario, Canada would helpyou too? I have been to many parts of Canada long ago but not familiar with the government there..

Take care and wishing you the best care for your wife..

Starshine

reply to Starshine
Lollaloop
 in response to Starshine...   

Thank you for your reply, I will visit their site and let you know the outcome. Thank you for taking time out of your busy life to provide us with this contact. Thank you, again.

Sincerely,

Natasha

reply to Lollaloop
Starshine

I am sorry your wife has terminal cancer...just very, very sorry.

I looked for some help in Canada and came up with hospice and they do help out..

Here is the link...

http://www.pilgrimshospice.ca/page.asp?fb=11

there is another program and it is in my blog but they were closed so I don't know if it for the United States or Canada only...

hoping things improve...

Starshine

reply to Starshine